Risks and benefits of sharing patient information on social media: a digital dilemma

Research output: Contribution to journalArticleResearchpeer review

Authors

  • Robert M.A. Van Der Boon
  • A. John Camm
  • C. Aguiar
  • E. Biasin
  • G. Breithardt
  • H. Bueno
  • I. Drossart
  • N. Hoppe
  • E. Kamenjasevic
  • R. Ladeiras-Lopes
  • Paul Mcgreavy
  • P. Lanzer
  • R. Vidal-Perez
  • Nico Bruining

External Research Organisations

  • Erasmus University Rotterdam
  • St. George's University of London
  • Centro Hospitalar Lisboa Ocidental
  • KU Leuven
  • University of Münster
  • UpHill Health
  • Universidade do Porto
  • University Hospital of A Coruña (CHUAC)
  • Hospital Universitario 12 de Octubre
  • Centro Nacional de Investigaciones Cardiovasculares (CNIC)
  • Centro de Investigación Biomédica en Red Enfermedades Cardiovaculares (CIBERCV)
  • European Society of Cardiology (ESC)
  • Complutense University of Madrid (UCM)
  • Gesundheitszentrum Bitterfeld / Wolfen gGmbH
View graph of relations

Details

Original languageEnglish
Pages (from-to)199-207
Number of pages9
JournalEuropean Heart Journal - Digital Health
Volume5
Issue number3
Early online date12 Feb 2024
Publication statusPublished - May 2024

Abstract

Social media (SoMe) has witnessed remarkable growth and emerged as a dominant method of communication worldwide. Platforms such as Facebook, X (formerly Twitter), LinkedIn, Instagram, TikTok, and YouTube have become important tools of the digital native generation. In the field of medicine, particularly, cardiology, attitudes towards SoMe have shifted, and professionals increasingly utilize it to share scientific findings, network with experts, and enhance teaching and learning. Notably, SoMe is being leveraged for teaching purposes, including the sharing of challenging and intriguing cases. However, sharing patient data, including photos or images, online carries significant implications and risks, potentially compromising individual privacy both online and offline. Privacy and data protection are fundamental rights within European Union treaties, and the General Data Protection Regulation (GDPR) serves as the cornerstone of data protection legislation. The GDPR outlines crucial requirements, such as obtaining 'consent' and implementing 'anonymization', that must be met before sharing sensitive and patient-identifiable information. Additionally, it is vital to consider the patient's perspective and prioritize ethical and social considerations when addressing challenges associated with sharing patient information on SoMe platforms. Given the absence of a peer-review process and clear guidelines, we present an initial approach, a code of conduct, and recommendations for the ethical use of SoMe. In conclusion, this comprehensive review underscores the importance of a balanced approach that ensures patient privacy and upholds ethical standards while harnessing the immense potential of SoMe to advance cardiology practice and facilitate knowledge dissemination.

Keywords

    Education, Ethical, Legal, Patient information, Privacy, Social media

ASJC Scopus subject areas

Cite this

Risks and benefits of sharing patient information on social media: a digital dilemma. / Van Der Boon, Robert M.A.; Camm, A. John; Aguiar, C. et al.
In: European Heart Journal - Digital Health, Vol. 5, No. 3, 05.2024, p. 199-207.

Research output: Contribution to journalArticleResearchpeer review

Van Der Boon, RMA, Camm, AJ, Aguiar, C, Biasin, E, Breithardt, G, Bueno, H, Drossart, I, Hoppe, N, Kamenjasevic, E, Ladeiras-Lopes, R, Mcgreavy, P, Lanzer, P, Vidal-Perez, R & Bruining, N 2024, 'Risks and benefits of sharing patient information on social media: a digital dilemma', European Heart Journal - Digital Health, vol. 5, no. 3, pp. 199-207. https://doi.org/10.1093/ehjdh/ztae009
Van Der Boon, R. M. A., Camm, A. J., Aguiar, C., Biasin, E., Breithardt, G., Bueno, H., Drossart, I., Hoppe, N., Kamenjasevic, E., Ladeiras-Lopes, R., Mcgreavy, P., Lanzer, P., Vidal-Perez, R., & Bruining, N. (2024). Risks and benefits of sharing patient information on social media: a digital dilemma. European Heart Journal - Digital Health, 5(3), 199-207. https://doi.org/10.1093/ehjdh/ztae009
Van Der Boon RMA, Camm AJ, Aguiar C, Biasin E, Breithardt G, Bueno H et al. Risks and benefits of sharing patient information on social media: a digital dilemma. European Heart Journal - Digital Health. 2024 May;5(3):199-207. Epub 2024 Feb 12. doi: 10.1093/ehjdh/ztae009
Van Der Boon, Robert M.A. ; Camm, A. John ; Aguiar, C. et al. / Risks and benefits of sharing patient information on social media : a digital dilemma. In: European Heart Journal - Digital Health. 2024 ; Vol. 5, No. 3. pp. 199-207.
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AU - Camm, A. John

AU - Aguiar, C.

AU - Biasin, E.

AU - Breithardt, G.

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AU - Drossart, I.

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