Details
Translated title of the contribution | Quo Vadis Data Linkage in Germany? An Initial Inventory |
---|---|
Original language | German |
Pages (from-to) | e20-e31 |
Journal | GESUNDHEITSWESEN |
Volume | 80 |
Issue number | 3 |
Publication status | Published - 2018 |
Abstract
In recent years, linking different data sources, also called data linkage or record linkage, to address scientific questions, is being increasingly used in Germany. However, there are very few published reports and new projects develop the necessary tools independently of each other. Therefore, a team of researchers joined together to exchange their experiences on data linkage and to give suggestions on how linkage could be done for scientists, reviewers as well as members of data privacy boards and ethics committees. It is the aim of this article to assist future projects that want to link German data on an individual level. In addition to the legal framework conditions (data privacy), also examples of types of data linkage, their fields of application und potential pitfalls as well as the methods of preventing them will be described in an application-oriented fashion.
ASJC Scopus subject areas
- Medicine(all)
- Public Health, Environmental and Occupational Health
Sustainable Development Goals
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In: GESUNDHEITSWESEN, Vol. 80, No. 3, 2018, p. e20-e31.
Research output: Contribution to journal › Article › Research › peer review
}
TY - JOUR
T1 - Quo vadis Datenlinkage in Deutschland? Eine erste Bestandsaufnahme
AU - March, Stefanie
AU - Antoni, Manfred
AU - Kieschke, Joachim
AU - Kollhorst, Bianca
AU - Maier, Birga
AU - Müller, Gabriele
AU - Sariyar, Murat
AU - Schulz, Mandy
AU - Enno, Swart
AU - Zeidler, Jan
AU - Hoffmann, Falk
PY - 2018
Y1 - 2018
N2 - In recent years, linking different data sources, also called data linkage or record linkage, to address scientific questions, is being increasingly used in Germany. However, there are very few published reports and new projects develop the necessary tools independently of each other. Therefore, a team of researchers joined together to exchange their experiences on data linkage and to give suggestions on how linkage could be done for scientists, reviewers as well as members of data privacy boards and ethics committees. It is the aim of this article to assist future projects that want to link German data on an individual level. In addition to the legal framework conditions (data privacy), also examples of types of data linkage, their fields of application und potential pitfalls as well as the methods of preventing them will be described in an application-oriented fashion.
AB - In recent years, linking different data sources, also called data linkage or record linkage, to address scientific questions, is being increasingly used in Germany. However, there are very few published reports and new projects develop the necessary tools independently of each other. Therefore, a team of researchers joined together to exchange their experiences on data linkage and to give suggestions on how linkage could be done for scientists, reviewers as well as members of data privacy boards and ethics committees. It is the aim of this article to assist future projects that want to link German data on an individual level. In addition to the legal framework conditions (data privacy), also examples of types of data linkage, their fields of application und potential pitfalls as well as the methods of preventing them will be described in an application-oriented fashion.
UR - http://www.scopus.com/inward/record.url?scp=85042352710&partnerID=8YFLogxK
U2 - 10.1055/s-0043-125070
DO - 10.1055/s-0043-125070
M3 - Artikel
C2 - 29462830
AN - SCOPUS:85042352710
VL - 80
SP - e20-e31
JO - GESUNDHEITSWESEN
JF - GESUNDHEITSWESEN
SN - 0941-3790
IS - 3
ER -