Details
| Original language | English |
|---|---|
| Pages (from-to) | 519-529 |
| Number of pages | 11 |
| Journal | Patient preference and adherence |
| Volume | 18 |
| Publication status | Published - 29 Feb 2024 |
Abstract
Purpose: In Germany, patients with incurable chronic diseases living at home increasingly have the option of using outpatient and day care hospice and specialized palliative care services. The present study examined and compared patients’ and their relatives’ preferences for end-of-life outpatient and day care services. Patients and Methods: The study used a questionnaire integrating a discrete choice experiment. For six scenarios, participants chose between two hypothetical end-of-life care offers, described by seven attributes. The model compared place of care, frequency and duration of care and support, specialized medical palliative care, accompanied activities, and relieving patient counselling. The model also included optional overnight care and willingness to pay. Patients and the relatives of patients suffering from incurable, chronic diseases who were not yet receiving palliative care were recruited via hospitals and self-help groups (06/2021–07/2022). Results: The results were based on data from 436 questionnaires (patients: n=263, relatives: n=173). All attributes had a statistically significant impact on choice decisions, with place of care showing the greatest importance. All respondents highly preferred care in the patient’s home over out-of-home care. Patients stressed the importance of special medical (palliative) care and valued accompanied activities, often facilitated by hospice volunteers. Relatives, but not patients, considered the frequency and duration of care highly relevant. Conclusion: The results suggest a higher demand for care in the patient’s home than for out-of-home care. Patients’ and relatives’ high preference for special medical care and the relief of family caregiver burden should be considered in the design of day care services.
Keywords
- ambulatory care, discrete choice experiment, hospice care, medical day care, palliative care, preferences
ASJC Scopus subject areas
- Medicine(all)
- Medicine (miscellaneous)
- Social Sciences(all)
- Social Sciences (miscellaneous)
- Pharmacology, Toxicology and Pharmaceutics(all)
- Pharmacology, Toxicology and Pharmaceutics (miscellaneous)
- Medicine(all)
- Health Policy
Sustainable Development Goals
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In: Patient preference and adherence, Vol. 18, 29.02.2024, p. 519-529.
Research output: Contribution to journal › Article › Research › peer review
}
TY - JOUR
T1 - Patients’ and Relatives’ Preferences for Outpatient and Day Care Services Within End-of-Life Care in Germany
T2 - A Discrete Choice Experiment
AU - Apolinarski, Beate
AU - Röwer, Hanna A.A.
AU - de Jong, Lea
AU - Herbst, Franziska A.
AU - Huperz, Carolin
AU - Schneider, Nils
AU - Damm, Kathrin
AU - Stiel, Stephanie
N1 - Funding Information: The present study comprised part of the study “ABPATITE – Improving health care for patients with terminal, progressive illnesses: Status and demand analysis for palliative day care clinics and day hospices and recommendations for health care planning”, financed by the German Innovation Fund of the Federal Joint Committee (Gemeinsamer Bundesausschuss) (Grant N° 01VSF19034). The funding body was not involved in the study design; the collection, analysis and interpretation of study data; or the drafting of this article.
PY - 2024/2/29
Y1 - 2024/2/29
N2 - Purpose: In Germany, patients with incurable chronic diseases living at home increasingly have the option of using outpatient and day care hospice and specialized palliative care services. The present study examined and compared patients’ and their relatives’ preferences for end-of-life outpatient and day care services. Patients and Methods: The study used a questionnaire integrating a discrete choice experiment. For six scenarios, participants chose between two hypothetical end-of-life care offers, described by seven attributes. The model compared place of care, frequency and duration of care and support, specialized medical palliative care, accompanied activities, and relieving patient counselling. The model also included optional overnight care and willingness to pay. Patients and the relatives of patients suffering from incurable, chronic diseases who were not yet receiving palliative care were recruited via hospitals and self-help groups (06/2021–07/2022). Results: The results were based on data from 436 questionnaires (patients: n=263, relatives: n=173). All attributes had a statistically significant impact on choice decisions, with place of care showing the greatest importance. All respondents highly preferred care in the patient’s home over out-of-home care. Patients stressed the importance of special medical (palliative) care and valued accompanied activities, often facilitated by hospice volunteers. Relatives, but not patients, considered the frequency and duration of care highly relevant. Conclusion: The results suggest a higher demand for care in the patient’s home than for out-of-home care. Patients’ and relatives’ high preference for special medical care and the relief of family caregiver burden should be considered in the design of day care services.
AB - Purpose: In Germany, patients with incurable chronic diseases living at home increasingly have the option of using outpatient and day care hospice and specialized palliative care services. The present study examined and compared patients’ and their relatives’ preferences for end-of-life outpatient and day care services. Patients and Methods: The study used a questionnaire integrating a discrete choice experiment. For six scenarios, participants chose between two hypothetical end-of-life care offers, described by seven attributes. The model compared place of care, frequency and duration of care and support, specialized medical palliative care, accompanied activities, and relieving patient counselling. The model also included optional overnight care and willingness to pay. Patients and the relatives of patients suffering from incurable, chronic diseases who were not yet receiving palliative care were recruited via hospitals and self-help groups (06/2021–07/2022). Results: The results were based on data from 436 questionnaires (patients: n=263, relatives: n=173). All attributes had a statistically significant impact on choice decisions, with place of care showing the greatest importance. All respondents highly preferred care in the patient’s home over out-of-home care. Patients stressed the importance of special medical (palliative) care and valued accompanied activities, often facilitated by hospice volunteers. Relatives, but not patients, considered the frequency and duration of care highly relevant. Conclusion: The results suggest a higher demand for care in the patient’s home than for out-of-home care. Patients’ and relatives’ high preference for special medical care and the relief of family caregiver burden should be considered in the design of day care services.
KW - ambulatory care
KW - discrete choice experiment
KW - hospice care
KW - medical day care
KW - palliative care
KW - preferences
UR - http://www.scopus.com/inward/record.url?scp=85186442386&partnerID=8YFLogxK
U2 - 10.2147/PPA.S442047
DO - 10.2147/PPA.S442047
M3 - Article
AN - SCOPUS:85186442386
VL - 18
SP - 519
EP - 529
JO - Patient preference and adherence
JF - Patient preference and adherence
SN - 1177-889X
ER -