Details
| Original language | English |
|---|---|
| Pages (from-to) | 407-417 |
| Number of pages | 11 |
| Journal | Medicine, Health Care and Philosophy |
| Volume | 27 |
| Issue number | 3 |
| Early online date | 3 Jul 2024 |
| Publication status | Published - Sept 2024 |
Abstract
Disability studies have been successfully focusing on individuals' lived experiences, the personalization of goals, and the constitution of the individual in defining disease and restructuring public understandings of disability. Although they had a strong influence in the policy making and medical modeling of disease, their framework has not been translated to traditional naturalistic accounts of disease. I will argue that, using new developments in evolutionary biology (Extended Evolutionary Synthesis [EES] about questions of proper function) and behavioral ecology (Niche conformance and construction about the questions of reference classes in biostatistics accounts), the main elements of the framework of disability studies can be used to represent life histories at the conceptual level of the two main “non-normative” accounts of disease. I chose these accounts since they are related to medicine in a more descriptive way. The success of the practical aspects of disability studies this way will be communicated without causing injustice to the individual since they will represent the individuality of the patient in two main naturalistic accounts of disease: the biostatistical account and the evolutionary functional account. Although most accounts criticizing the concept of disease as value-laden do not supply a positive element, disability studies can supply a good point for descriptive extension of the concept through inclusion of epistemic agency.
Keywords
- Disability studies, Evolutionary medicine, Extended evolutionary synthesis, Niche construction, Patient autonomy
ASJC Scopus subject areas
- Social Sciences(all)
- Health(social science)
- Social Sciences(all)
- Education
- Arts and Humanities(all)
- Philosophy
- Medicine(all)
- Health Policy
Sustainable Development Goals
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In: Medicine, Health Care and Philosophy, Vol. 27, No. 3, 09.2024, p. 407-417.
Research output: Contribution to journal › Article › Research › peer review
}
TY - JOUR
T1 - Learning from disability studies to introduce the role of the individual to naturalistic accounts of disease
AU - Altinok, Ozan Altan
N1 - Publisher Copyright: © The Author(s) 2024.
PY - 2024/9
Y1 - 2024/9
N2 - Disability studies have been successfully focusing on individuals' lived experiences, the personalization of goals, and the constitution of the individual in defining disease and restructuring public understandings of disability. Although they had a strong influence in the policy making and medical modeling of disease, their framework has not been translated to traditional naturalistic accounts of disease. I will argue that, using new developments in evolutionary biology (Extended Evolutionary Synthesis [EES] about questions of proper function) and behavioral ecology (Niche conformance and construction about the questions of reference classes in biostatistics accounts), the main elements of the framework of disability studies can be used to represent life histories at the conceptual level of the two main “non-normative” accounts of disease. I chose these accounts since they are related to medicine in a more descriptive way. The success of the practical aspects of disability studies this way will be communicated without causing injustice to the individual since they will represent the individuality of the patient in two main naturalistic accounts of disease: the biostatistical account and the evolutionary functional account. Although most accounts criticizing the concept of disease as value-laden do not supply a positive element, disability studies can supply a good point for descriptive extension of the concept through inclusion of epistemic agency.
AB - Disability studies have been successfully focusing on individuals' lived experiences, the personalization of goals, and the constitution of the individual in defining disease and restructuring public understandings of disability. Although they had a strong influence in the policy making and medical modeling of disease, their framework has not been translated to traditional naturalistic accounts of disease. I will argue that, using new developments in evolutionary biology (Extended Evolutionary Synthesis [EES] about questions of proper function) and behavioral ecology (Niche conformance and construction about the questions of reference classes in biostatistics accounts), the main elements of the framework of disability studies can be used to represent life histories at the conceptual level of the two main “non-normative” accounts of disease. I chose these accounts since they are related to medicine in a more descriptive way. The success of the practical aspects of disability studies this way will be communicated without causing injustice to the individual since they will represent the individuality of the patient in two main naturalistic accounts of disease: the biostatistical account and the evolutionary functional account. Although most accounts criticizing the concept of disease as value-laden do not supply a positive element, disability studies can supply a good point for descriptive extension of the concept through inclusion of epistemic agency.
KW - Disability studies
KW - Evolutionary medicine
KW - Extended evolutionary synthesis
KW - Niche construction
KW - Patient autonomy
UR - http://www.scopus.com/inward/record.url?scp=85197557055&partnerID=8YFLogxK
U2 - 10.1007/s11019-024-10216-9
DO - 10.1007/s11019-024-10216-9
M3 - Article
C2 - 38958899
AN - SCOPUS:85197557055
VL - 27
SP - 407
EP - 417
JO - Medicine, Health Care and Philosophy
JF - Medicine, Health Care and Philosophy
SN - 1386-7423
IS - 3
ER -