Details
| Translated title of the contribution | Gute Praxis Datenlinkage (GPD) |
|---|---|
| Original language | English |
| Pages (from-to) | 636-650 |
| Number of pages | 15 |
| Journal | GESUNDHEITSWESEN |
| Volume | 81 |
| Issue number | 8-9 |
| Publication status | E-pub ahead of print - 8 Aug 2019 |
Abstract
Individual data linkage of different data sources for research purposes is being increasingly used in Germany in recent years. However, generally accepted methodological guidance is missing. The aim of this article is to define such methodological standards for research projects. Another aim is to provide readers with a checklist for critical appraisal of research proposals and articles. Since 2016, an expert panel of members of different German scientific societies have worked together and developed 7 guidelines with a total of 27 practical recommendations. These recommendations include (1) research aims, questions, data sources and resources, (2) infrastructure and data flow, (3) data privacy, (4) ethics, (5) key variables and type of linkage, (6) data validation/quality assurance and (7) long-term use for future research questions. The authors provide a rationale for each recommendation. Future revisions will include any new developments in science and data privacy.
Keywords
- epidemiology, guidelines, health services research, personal data, record linkage, standard
ASJC Scopus subject areas
- Medicine(all)
- Public Health, Environmental and Occupational Health
Sustainable Development Goals
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In: GESUNDHEITSWESEN, Vol. 81, No. 8-9, 08.08.2019, p. 636-650.
Research output: Contribution to journal › Article › Research › peer review
}
TY - JOUR
T1 - Good Practice Data Linkage
AU - March, Stefanie
AU - Andrich, Silke
AU - Drepper, Johannes
AU - Horenkamp-Sonntag, Dirk
AU - Icks, Andrea
AU - Ihle, Peter
AU - Kieschke, Joachim
AU - Kollhorst, Bianca
AU - Maier, Birga
AU - Meyer, Ingo
AU - Müller, Gabriele
AU - Ohlmeier, Christoph
AU - Peschke, Dirk
AU - Richter, Adrian
AU - Rosenbusch, Marie Luise
AU - Scholten, Nadine
AU - Schulz, Mandy
AU - Stallmann, Christoph
AU - Swart, Enno
AU - Wobbe-Ribinski, Stefanie
AU - Wolter, Antke
AU - Zeidler, Jan
AU - Hoffmann, Falk
PY - 2019/8/8
Y1 - 2019/8/8
N2 - Individual data linkage of different data sources for research purposes is being increasingly used in Germany in recent years. However, generally accepted methodological guidance is missing. The aim of this article is to define such methodological standards for research projects. Another aim is to provide readers with a checklist for critical appraisal of research proposals and articles. Since 2016, an expert panel of members of different German scientific societies have worked together and developed 7 guidelines with a total of 27 practical recommendations. These recommendations include (1) research aims, questions, data sources and resources, (2) infrastructure and data flow, (3) data privacy, (4) ethics, (5) key variables and type of linkage, (6) data validation/quality assurance and (7) long-term use for future research questions. The authors provide a rationale for each recommendation. Future revisions will include any new developments in science and data privacy.
AB - Individual data linkage of different data sources for research purposes is being increasingly used in Germany in recent years. However, generally accepted methodological guidance is missing. The aim of this article is to define such methodological standards for research projects. Another aim is to provide readers with a checklist for critical appraisal of research proposals and articles. Since 2016, an expert panel of members of different German scientific societies have worked together and developed 7 guidelines with a total of 27 practical recommendations. These recommendations include (1) research aims, questions, data sources and resources, (2) infrastructure and data flow, (3) data privacy, (4) ethics, (5) key variables and type of linkage, (6) data validation/quality assurance and (7) long-term use for future research questions. The authors provide a rationale for each recommendation. Future revisions will include any new developments in science and data privacy.
KW - epidemiology
KW - guidelines
KW - health services research
KW - personal data
KW - record linkage
KW - standard
UR - http://www.scopus.com/inward/record.url?scp=85071309443&partnerID=8YFLogxK
U2 - 10.1055/a-0962-9933
DO - 10.1055/a-0962-9933
M3 - Article
C2 - 31394579
AN - SCOPUS:85071309443
VL - 81
SP - 636
EP - 650
JO - GESUNDHEITSWESEN
JF - GESUNDHEITSWESEN
SN - 0941-3790
IS - 8-9
ER -