Details
| Original language | English |
|---|---|
| Title of host publication | Collaborative Patient Centred eHealth - Proceedings of the HIT at HealthCare 2008 Joint Event |
| Subtitle of host publication | 25th MIC Congress, 3rd International Congress Sixi, Special ISV-NVKVV Event, 8th Belgian eHealth Symposium |
| Publisher | IOS Press |
| Pages | 67-72 |
| Number of pages | 6 |
| ISBN (electronic) | 978-1-60750-373-6 |
| ISBN (print) | 9781586039226 |
| Publication status | Published - 2008 |
| Event | Health Information and Technology, HIT at HealthCare 2008 - Collaborative Patient Centred eHealth, Joint Event: 25th MIC Congress, 3rd International Congress Sixi, Special ISV-NVKVV Event, 8th Belgian eHealth Symposium - Brussels, Belgium Duration: 8 Oct 2008 → 10 Oct 2008 |
Publication series
| Name | Studies in Health Technology and Informatics |
|---|---|
| Volume | 141 |
| ISSN (Print) | 0926-9630 |
| ISSN (electronic) | 1879-8365 |
Abstract
The paper proposes a data protection framework for trans-European medical research projects, which is based on a technical security infrastructure as well as on organizational measures and contractual obligations. It mainly relies on pseudonymization, an internal Data Protection Authority and on a Trusted Third Party. The outcome is an environment that combines both good research conditions and an extensive protection of patients' privacy.
Keywords
- Anonymization, Data protection, Genetic research, Pseudonymization
ASJC Scopus subject areas
- Engineering(all)
- Biomedical Engineering
- Medicine(all)
- Health Informatics
- Health Professions(all)
- Health Information Management
Cite this
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Collaborative Patient Centred eHealth - Proceedings of the HIT at HealthCare 2008 Joint Event: 25th MIC Congress, 3rd International Congress Sixi, Special ISV-NVKVV Event, 8th Belgian eHealth Symposium. IOS Press, 2008. p. 67-72 (Studies in Health Technology and Informatics; Vol. 141).
Research output: Chapter in book/report/conference proceeding › Conference contribution › Research › peer review
}
TY - GEN
T1 - A data protection framework for transeuropean genetic research projects
AU - Claerhout, Brecht
AU - Forgó, Nikolaus
AU - Krügel, Tina
AU - Arning, Marian
AU - De Moor, Georges
PY - 2008
Y1 - 2008
N2 - The paper proposes a data protection framework for trans-European medical research projects, which is based on a technical security infrastructure as well as on organizational measures and contractual obligations. It mainly relies on pseudonymization, an internal Data Protection Authority and on a Trusted Third Party. The outcome is an environment that combines both good research conditions and an extensive protection of patients' privacy.
AB - The paper proposes a data protection framework for trans-European medical research projects, which is based on a technical security infrastructure as well as on organizational measures and contractual obligations. It mainly relies on pseudonymization, an internal Data Protection Authority and on a Trusted Third Party. The outcome is an environment that combines both good research conditions and an extensive protection of patients' privacy.
KW - Anonymization
KW - Data protection
KW - Genetic research
KW - Pseudonymization
UR - http://www.scopus.com/inward/record.url?scp=58149237178&partnerID=8YFLogxK
U2 - 10.3233/978-1-58603-922-6-67
DO - 10.3233/978-1-58603-922-6-67
M3 - Conference contribution
C2 - 18953126
AN - SCOPUS:58149237178
SN - 9781586039226
T3 - Studies in Health Technology and Informatics
SP - 67
EP - 72
BT - Collaborative Patient Centred eHealth - Proceedings of the HIT at HealthCare 2008 Joint Event
PB - IOS Press
T2 - Health Information and Technology, HIT at HealthCare 2008 - Collaborative Patient Centred eHealth, Joint Event: 25th MIC Congress, 3rd International Congress Sixi, Special ISV-NVKVV Event, 8th Belgian eHealth Symposium
Y2 - 8 October 2008 through 10 October 2008
ER -