Risks and benefits of sharing patient information on social media: a digital dilemma

Publikation: Beitrag in FachzeitschriftArtikelForschungPeer-Review

Autoren

  • Robert M.A. Van Der Boon
  • A. John Camm
  • C. Aguiar
  • E. Biasin
  • G. Breithardt
  • H. Bueno
  • I. Drossart
  • N. Hoppe
  • E. Kamenjasevic
  • R. Ladeiras-Lopes
  • Paul Mcgreavy
  • P. Lanzer
  • R. Vidal-Perez
  • Nico Bruining

Externe Organisationen

  • Erasmus University Rotterdam
  • St. George's University of London
  • Centro Hospitalar Lisboa Ocidental
  • KU Leuven
  • Westfälische Wilhelms-Universität Münster (WWU)
  • UpHill Health
  • Universidade do Porto
  • University Hospital of A Coruña (CHUAC)
  • Hospital Universitario 12 de Octubre
  • Centro Nacional de Investigaciones Cardiovasculares (CNIC)
  • Centro de Investigación Biomédica en Red Enfermedades Cardiovaculares (CIBERCV)
  • European Society of Cardiology (ESC)
  • Complutense Universität Madrid (UCM)
  • Gesundheitszentrum Bitterfeld / Wolfen gGmbH
Forschungs-netzwerk anzeigen

Details

OriginalspracheEnglisch
Seiten (von - bis)199-207
Seitenumfang9
FachzeitschriftEuropean Heart Journal - Digital Health
Jahrgang5
Ausgabenummer3
Frühes Online-Datum12 Feb. 2024
PublikationsstatusVeröffentlicht - Mai 2024

Abstract

Social media (SoMe) has witnessed remarkable growth and emerged as a dominant method of communication worldwide. Platforms such as Facebook, X (formerly Twitter), LinkedIn, Instagram, TikTok, and YouTube have become important tools of the digital native generation. In the field of medicine, particularly, cardiology, attitudes towards SoMe have shifted, and professionals increasingly utilize it to share scientific findings, network with experts, and enhance teaching and learning. Notably, SoMe is being leveraged for teaching purposes, including the sharing of challenging and intriguing cases. However, sharing patient data, including photos or images, online carries significant implications and risks, potentially compromising individual privacy both online and offline. Privacy and data protection are fundamental rights within European Union treaties, and the General Data Protection Regulation (GDPR) serves as the cornerstone of data protection legislation. The GDPR outlines crucial requirements, such as obtaining 'consent' and implementing 'anonymization', that must be met before sharing sensitive and patient-identifiable information. Additionally, it is vital to consider the patient's perspective and prioritize ethical and social considerations when addressing challenges associated with sharing patient information on SoMe platforms. Given the absence of a peer-review process and clear guidelines, we present an initial approach, a code of conduct, and recommendations for the ethical use of SoMe. In conclusion, this comprehensive review underscores the importance of a balanced approach that ensures patient privacy and upholds ethical standards while harnessing the immense potential of SoMe to advance cardiology practice and facilitate knowledge dissemination.

ASJC Scopus Sachgebiete

Zitieren

Risks and benefits of sharing patient information on social media: a digital dilemma. / Van Der Boon, Robert M.A.; Camm, A. John; Aguiar, C. et al.
in: European Heart Journal - Digital Health, Jahrgang 5, Nr. 3, 05.2024, S. 199-207.

Publikation: Beitrag in FachzeitschriftArtikelForschungPeer-Review

Van Der Boon, RMA, Camm, AJ, Aguiar, C, Biasin, E, Breithardt, G, Bueno, H, Drossart, I, Hoppe, N, Kamenjasevic, E, Ladeiras-Lopes, R, Mcgreavy, P, Lanzer, P, Vidal-Perez, R & Bruining, N 2024, 'Risks and benefits of sharing patient information on social media: a digital dilemma', European Heart Journal - Digital Health, Jg. 5, Nr. 3, S. 199-207. https://doi.org/10.1093/ehjdh/ztae009
Van Der Boon, R. M. A., Camm, A. J., Aguiar, C., Biasin, E., Breithardt, G., Bueno, H., Drossart, I., Hoppe, N., Kamenjasevic, E., Ladeiras-Lopes, R., Mcgreavy, P., Lanzer, P., Vidal-Perez, R., & Bruining, N. (2024). Risks and benefits of sharing patient information on social media: a digital dilemma. European Heart Journal - Digital Health, 5(3), 199-207. https://doi.org/10.1093/ehjdh/ztae009
Van Der Boon RMA, Camm AJ, Aguiar C, Biasin E, Breithardt G, Bueno H et al. Risks and benefits of sharing patient information on social media: a digital dilemma. European Heart Journal - Digital Health. 2024 Mai;5(3):199-207. Epub 2024 Feb 12. doi: 10.1093/ehjdh/ztae009
Van Der Boon, Robert M.A. ; Camm, A. John ; Aguiar, C. et al. / Risks and benefits of sharing patient information on social media : a digital dilemma. in: European Heart Journal - Digital Health. 2024 ; Jahrgang 5, Nr. 3. S. 199-207.
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T1 - Risks and benefits of sharing patient information on social media

T2 - a digital dilemma

AU - Van Der Boon, Robert M.A.

AU - Camm, A. John

AU - Aguiar, C.

AU - Biasin, E.

AU - Breithardt, G.

AU - Bueno, H.

AU - Drossart, I.

AU - Hoppe, N.

AU - Kamenjasevic, E.

AU - Ladeiras-Lopes, R.

AU - Mcgreavy, Paul

AU - Lanzer, P.

AU - Vidal-Perez, R.

AU - Bruining, Nico

N1 - Publisher Copyright: © 2024 The Author(s). Published by Oxford University Press on behalf of the European Society of Cardiology.

PY - 2024/5

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