A data protection framework for transeuropean genetic research projects

Publikation: Beitrag in Buch/Bericht/Sammelwerk/KonferenzbandAufsatz in KonferenzbandForschungPeer-Review

Autoren

  • Brecht Claerhout
  • Nikolaus Forgó
  • Tina Krügel
  • Marian Arning
  • Georges De Moor

Organisationseinheiten

Externe Organisationen

  • Custodix
Forschungs-netzwerk anzeigen

Details

OriginalspracheEnglisch
Titel des SammelwerksCollaborative Patient Centred eHealth - Proceedings of the HIT at HealthCare 2008 Joint Event
Untertitel25th MIC Congress, 3rd International Congress Sixi, Special ISV-NVKVV Event, 8th Belgian eHealth Symposium
Herausgeber (Verlag)IOS Press
Seiten67-72
Seitenumfang6
ISBN (elektronisch)978-1-60750-373-6
ISBN (Print)9781586039226
PublikationsstatusVeröffentlicht - 2008
VeranstaltungHealth Information and Technology, HIT at HealthCare 2008 - Collaborative Patient Centred eHealth, Joint Event: 25th MIC Congress, 3rd International Congress Sixi, Special ISV-NVKVV Event, 8th Belgian eHealth Symposium - Brussels, Belgien
Dauer: 8 Okt. 200810 Okt. 2008

Publikationsreihe

NameStudies in Health Technology and Informatics
Band141
ISSN (Print)0926-9630
ISSN (elektronisch)1879-8365

Abstract

The paper proposes a data protection framework for trans-European medical research projects, which is based on a technical security infrastructure as well as on organizational measures and contractual obligations. It mainly relies on pseudonymization, an internal Data Protection Authority and on a Trusted Third Party. The outcome is an environment that combines both good research conditions and an extensive protection of patients' privacy.

ASJC Scopus Sachgebiete

Zitieren

A data protection framework for transeuropean genetic research projects. / Claerhout, Brecht; Forgó, Nikolaus; Krügel, Tina et al.
Collaborative Patient Centred eHealth - Proceedings of the HIT at HealthCare 2008 Joint Event: 25th MIC Congress, 3rd International Congress Sixi, Special ISV-NVKVV Event, 8th Belgian eHealth Symposium. IOS Press, 2008. S. 67-72 (Studies in Health Technology and Informatics; Band 141).

Publikation: Beitrag in Buch/Bericht/Sammelwerk/KonferenzbandAufsatz in KonferenzbandForschungPeer-Review

Claerhout, B, Forgó, N, Krügel, T, Arning, M & De Moor, G 2008, A data protection framework for transeuropean genetic research projects. in Collaborative Patient Centred eHealth - Proceedings of the HIT at HealthCare 2008 Joint Event: 25th MIC Congress, 3rd International Congress Sixi, Special ISV-NVKVV Event, 8th Belgian eHealth Symposium. Studies in Health Technology and Informatics, Bd. 141, IOS Press, S. 67-72, Health Information and Technology, HIT at HealthCare 2008 - Collaborative Patient Centred eHealth, Joint Event: 25th MIC Congress, 3rd International Congress Sixi, Special ISV-NVKVV Event, 8th Belgian eHealth Symposium, Brussels, Belgien, 8 Okt. 2008. https://doi.org/10.3233/978-1-58603-922-6-67
Claerhout, B., Forgó, N., Krügel, T., Arning, M., & De Moor, G. (2008). A data protection framework for transeuropean genetic research projects. In Collaborative Patient Centred eHealth - Proceedings of the HIT at HealthCare 2008 Joint Event: 25th MIC Congress, 3rd International Congress Sixi, Special ISV-NVKVV Event, 8th Belgian eHealth Symposium (S. 67-72). (Studies in Health Technology and Informatics; Band 141). IOS Press. https://doi.org/10.3233/978-1-58603-922-6-67
Claerhout B, Forgó N, Krügel T, Arning M, De Moor G. A data protection framework for transeuropean genetic research projects. in Collaborative Patient Centred eHealth - Proceedings of the HIT at HealthCare 2008 Joint Event: 25th MIC Congress, 3rd International Congress Sixi, Special ISV-NVKVV Event, 8th Belgian eHealth Symposium. IOS Press. 2008. S. 67-72. (Studies in Health Technology and Informatics). doi: 10.3233/978-1-58603-922-6-67
Claerhout, Brecht ; Forgó, Nikolaus ; Krügel, Tina et al. / A data protection framework for transeuropean genetic research projects. Collaborative Patient Centred eHealth - Proceedings of the HIT at HealthCare 2008 Joint Event: 25th MIC Congress, 3rd International Congress Sixi, Special ISV-NVKVV Event, 8th Belgian eHealth Symposium. IOS Press, 2008. S. 67-72 (Studies in Health Technology and Informatics).
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